You’d think treatment would make you feel better. Not so. At least not right away. I’ve been on an IV antibiotic called Rocephin for nearly two weeks now and it’s just about killing me. This is my second IV antibiotic and it’s worse than the first. The initial two-to-three weeks is the transitional period in which your body adjusts to the new medication, but will I make it another week? My pain has gone through the roof and I feel sicker and so much weaker. With Invanz I was actually able to walk around the house about seven times in a row for exercise. Not daily, but when I felt the need to wiggle. Now, I barely make one lap before I collapse.
It’s difficult to describe how it feels. When I stand up unsupported, I could almost swear my upper body had giant, heavy chains hanging from it. It feels so heavy and it’s so difficult to stand up straight. One lymie described it like walking at the bottom of the ocean. You know how water resists movement? I thought it a very apt description. I also have my own theory called The Snowglobe Effect.
Yesterday was one of the toughest yet. My pain certainly reached a seven, if not higher. I told Mom my legs felt like they were being eaten alive. They felt crushed and like my nerves were on fire. I thank God for pain medication and two amazing doctors who oversee my care.
After I receive my IV antibiotic in the morning my pain level starts climbing. By early afternoon, it’s really high and very difficult to concentrate on anything else to get my mind off of it while I’m waiting for the pain meds to start working. I’m often in tears and unable to lie still. By the time I’m feeling somewhat human again, it’s naptime. Can I just say how amazing my newly-discovered naps are? I have never been able to nap since I was a little kid. Somehow, I just started carving out a time to sleep during the day and it’s working! I’m truly ecstatic. There is no reprieve from suffering like sleep.
I’m hoping today will be better since it’s one of my two days off of the IV. Tomorrow is another day off and then four-to-five days back on, depending on whether I can handle another day of it. I’m looking forward to watching episodes of One Born Every Minute and a good nap!0