Remember shaking those round glass globes as a kid and watching the swirling white flakes completely destroy the scene within until they once again settled at the bottom?
The Snowglobe Effect is my theory on what it feels like for a lymie to go from a perfectly still, fully supported position, to sitting or standing up. Others describe it in many different ways, but this is mine. It just came to me as I described how I felt one day while sitting up after lying on the couch. Lying still, I felt reasonably comfortable and while keeping my mind busy, I could shove Lyme to the back of my awareness. But when I needed to get up for one reason or another, bam!
Lymies have spirochetes all over in their bodies, causing all sorts of havoc. I try not to think of it, but when I do I think of them as tiny little creatures eating my muscle tissue and poisoning my blood. Gross. I have a vivid imagination. But I digress. When lying still and relatively pain and misery-free, I feel relatively comfortable. But when I sit up, it feels like those tiny creatures awaken from a sleep with a start and begin running all over the inside of my body, barking orders and generally making a wreck of things. I instantly feel so much sicker… poisoned almost. I liken it to a shaken snowglobe: left alone and still, okay. Things are serene. Picked up and shaken, tons of swirling flakes dance all over and obliterate the space they’re in. Thus, my Snowglobe Effect. Some days the effect isn’t as bad as others. Some days it’s horrendous and I have to just sit awhile and wait for the feeling to settle.
Other lymies may not feel this, but then, some may. Maybe this comparison will help those who do to relate and know that they’re not alone.